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Addison's Disease Self Help Group (ADSHG)
This is the UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficency). ADSHG now numbers over 900 and send out four newsletters a year.
People can join via the web site and receive everything by e-mail, or print off a membership form and be a postal member.
Email: info@adshg.org.uk
Website: www.adshg.org.uk
Alzheimer's Disease Society (Cambridge Branch)
Alzheimer's Society - Cambridge & Ely branch
Nightingale Court,
Ida Darwin,
Fulbourn
CB1 5EE
Telephone: 01223 884031
Email: joe.oakes@asp.nhs.uk
Website: www.alzheimers.org.uk/cambridge&ely
National Website: www.alzheimers.org.uk
Email: enquiries@alzheimers.org.uk
Arthritis Care
Arthritis Care is the UK's largest voluntary organisation working with and for people with arthritis, empowering them to take control of their arthritis and their lives.
Tel: 0808 800 4050
Website: www.arthritiscare.org.uk
Arthritis Research Campaign
The Arthritis Research Campaign (ARC) aims to advance the understanding, prevention and treatment of arthritis and related conditions.
Arthritis Research Campaign, Copeman House, St Mary's Court, St Mary's Gate, Chesterfield, Derbyshire S41 7TD;
Tel: 0870 850 5000 or 01246 558 033; Fax: 01246 558 007;
Email: info@arc.org.uk
Website: www.arc.org.uk
Asthma UK
Asthma UK gives information on asthma and how to cope with it.
Asthma UK, Summit House, 70 Wilson Street, London EC2A 2DB;
Helpline: 08457 01 02 03;
Tel: 020 7786 4900;
Fax: 020 7256 6075;
E-mail: info@asthma.org.uk
Website: www.asthma.org.uk
British Heart Foundation
A network of support groups for patients and families affected by heart problems
14 Fitzhardinge Street, London W1H 6DH; Tel: 020 7935 0185;
Heart Information Line: 08450 70 80 70
Website: www.bhf.org.uk/
E-mail: internet@bhf.org.uk
The British Liver Trust
This charity seeks to advocate on behalf of people who have liver disease, increasing awareness and understanding, and funding medical research into the causes and treatment of liver disease
British Liver Trust, 2 Southampton Road, Ringwood, BH24 1HY;
Tel: 0870 770 8028
Fax: 01425 481335
Email: info@britishlivertrust.org.uk
National website: www.britishlivertrust.org.uk
British Lung Foundation
One person in seven in the UK is affected by a lung disease. Whether it's mild asthma or lung cancer, the British Lung Foundation is here for every one of them.
This is what we do:
• We support people affected by lung disease through the individual challenges they will face. Support is the focus of many of our activities, including Breathe Easy, our nationwide support network and Baby Breathe Easy, our parent support groups.
• We help people to understand their condition. We do this by providing comprehensive and clear information on paper, on the web and on the telephone.
• And we work for positive change in lung health. We do this by campaigning, raising awareness and funding world-class research.
73-75 Goswell Road, London EC1V 7ER; Tel: 020 7688 5555
Fax: 020 7688 5556
Email: enquiries@blf-uk.org
helpline: 08458 50 50 20
website: www.lunguk.org/
British Tinnitus Association
The British Tinnitus Association helps tinnitus patients, to disseminate information about tinnitus and to encourage and finance research into the condition.
The British Tinnitus Association, Ground Floor, Unit 5, Acorn Business Park, Woodseats Close, Sheffield S8 0TB; Email: info@tinnitus.org.uk
website: www.tinnitus.org.uk/
Tel: 0800 018 0527
Minicom: 0114 258 5694
Fax: 0144 258 2279
Cambridge ME Support Centre
Cambridge ME Support Centre give support and advice to people who either have ME or are parents/carers of people who have.
Tel: 01223 233 326
National website: www.meassociation.org.uk/
Local Website: www.cam-me.org.uk
Cardiomyopathy Association
The Cardiomyopathy Association is a registered charity which exists to help sufferers and medical professionals find ways to deal with a condition which, when identified can be monitored and, if required, treated with medication.
40 The Metro Centre, Tolpits Lane, Watford, Herts WD18 9SB UK;
Freephone: 0800 018 1024
Email: info@cardiomyopathy.org
National website: www.cardiomyopathy.org
Changing Faces
Changing Faces is a national charity providing help and support for children, their families and adults who have disfigurements, as well as working for better healthcare and raising public awareness.
Changing Faces, 33-37 University Street, London,WC1E 6JN;
Tel: 0845 4500 275;
Fax: 0845 4500 276
National website: www.changingfaces.org.uk/
Email: info@changingfaces.org.uk
The Child Brain Injury Trust Support Group
CBIT is a support group for families of children who have acquired brain injury and live in Cambridgeshire, Bedfordshire, Hertfordshire.
Child Brain Injury Trust
C/o Taylor Vinters, Merlin Place, Milton Road, Cambridge CB4 0DP
Tel: 01223 225255
Website: www.cbit-cambsbedsherts.org.uk
Contact a family
209-211 City Road, London, EC1V 1JN
Tel: 020 7608 8700; Fax: 020 7608 8701, Textphone: 0808 808 3556
Freephone helpline: 0808 808 3555
E-mail: info@cafamily.org.uk
Website: www.cafamily.org.uk
CORE - fighting gut and liver disease
CORE fund research into digestive disorders, provide information for sufferers, their families and friends and increase public and professional knowledge of digestive disorders.
CORE, 3 St Andrews Place, London NW1 4LB;
Email: info@corecharity.org.uk
National website: www.corecharity.org.uk
Tel: 0207 486 0341; Fax: 0207 22 4 2012.
Colitis and Crohn’s Disease (NACC)
The Association welcomes as members anyone who has colitis or Crohn’s disease, their families and friends, health professionals and anyone who wishes to support our activities. NACC offers information and support services to people who are living with Inflammatory bowel disease (IBD) and raises funds to support research into the medical, health care, social and psychological aspects of IBD
NACC, 4 Beaumount House, Sutton Road, St. Albans, Herts AL1 5HH
Information Line: 0845 130 2233
Support Line: 0845 130 3344;
E-mail:nacc@nacc.org.uk
National website: www.nacc.org.uk
Fax: 01727 862 550
Cystic Fibrosis Trust
The Cystic Fibrosis Trust funds research to find a cure for Cystic Fibrosis and to improve symptom control. It aims to ensure appropriate clinical care for those with Cystic Fibrosis and to support those affected by Cystic Fibrosis by providing information and support and, where appropriate, financial assistance.
Cystic Fibrosis Trust, 11 London Road, Bromley, Kent BR1 1BY
National website: www.cftrust.org.uk
Tel: 0208 464 7211; General helpline: 0845 859 1000; Fax: 0208 313 0472
E-mail:enquiries@cftrust.org.uk
Diabetes UK
Diabetes UK is the largest organisation in the UK working for people with diabetes, funding research, campaigning and helping people live with the condition.
10 Parkway, London NW1 7AA
National website: www.diabetes.org.uk
E-mail: info@diabetes.org.uk
Tel: 020 7424 1000; Careline number: 0845 120 2960 Fax: 020 7424 1001
Down's Heart Group
A charity offering support and information relating to heart conditions associated with Down's Syndrome.
PO Box 4260, Dunstable, LU6 2ZT
Tel: 0845 166 8061
website: www.dhg.org.uk
Down’s Syndrome Association
The Down’s Syndrome Association provides information, counselling and support for people with Down’s syndrome, their families and carers, as well as being a resource for interested professionals. They strive to improve knowledge of the condition.
Langdon Down Centre, 2a Langdon Park, Teddington TW11 9PS; Tel: 0845 230 0372; Fax: 0845 230 0373
National website: www.downs-syndrome.org.uk
E-mail: info@downs-syndrome.org.uk
Eosinophilic Disorders
See the FABED link below.
Epilepsy Action
Epilepsy Action gives information and advice on all epilepsy issues.
New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY UK;
Freephone: 0808 800 5050; Fax: 0113 391 0300; Email: helpline@epilepsy.org.uk
National website: www.epilepsy.org.uk
FABED - Families Affected By Eosinophilic Disorders
Website and group message board to raise awareness of eosinophilic disorders in the UK.
Contact: info@fabed.co.uk
National website: www.fabed.co.uk
Headway Cambridgeshire (The National Head Injuries Association)
Headway Cambridgeshire specialises in providing support to people who have survived brain injuries, and their family and carers.
Headway House, Brookfields, Mill Road, Cambridge CB1 3DF
Local contact: Tel: 01223 576 550; Fax: 01223 576 551; E-mail: headwaycambs@btconnect.com
Local webpage: www.headway-cambs.org.uk/
National website: www.headway.org.uk/
National e-mail: helpline@headway.org.uk Helpline: 0808 800 2244
Huntington’s Disease Association (HAD)
The Huntington’s Disease Association exists to support people affected by Huntington’s Disease. HAD also provides information and advice to professionals.
Downstream Building, 1 London Bridge, London, SE1 9BG
Email: info@hda.org.uk
National website: www.hda.org.uk
Tel: 020 7022 1950
Fax: 020 7022 1953
Regional advisor: Sue Hill 01353 648 437
Lupus UK
Lupus UK support diagnosed people and provides information to those seeking diagnosis, they increase public awareness about lupus and its impact on sufferers and families.
Lupus UK, St. James House, Eastern Road, Romford, Essex RM1 3NH
England; Email: headoffice@lupusuk.org.uk
National website: www.lupusuk.org.uk
Tel: 01708 731 251; Fax: 01780 73 1252
Meningitis Trust
The Trust produces an extensive range of information to raise awareness of the disease, offers a wide range of support for people affected by the disease and funds research into vaccines and treatment.
Meningitis Trust-Head Office, Fern House, Bath Road, Stroud,
Gloucestershire GL5 3TJ UK; Helpline number UK: 0845 6000 800 (calls charged at local rates)
National Website: www.meningitis-trust.org.uk
E-mail: info@meningitis-trust.org.uk
Tel: 01453 768 000; Fax: 01453 768 001;
Motor Neurone Disease Association
The Motor Neurone Disease Association is there for advice, support and information, and to find out more about the services available to you including regional care advisors, Association visitors, local branches, equipment loan and financial support.
Care Information Service, MND Association, PO Box 246, Northampton
NN1 2PR; Tel: 01604 250 505; Helpline: 08457 626 262; Fax: 01604 638 289
Email: helpline@mndassociation.org
Website: www.mndassociation.org
Multiple Sclerosis Society
The MS Society is the UK's largest charity for people affected by Multiple Sclerosis (MS) - about 85,000 people in the UK. Across the UK information and support is available to anyone affected by MS from our network of over 350 local branches.
MS Society, MS National Centre, 372 Edgware Road, London, NW2 6ND
Tel: 020 8438 0700
Website: www.mssociety.org.uk
Multiple Sclerosis Trust
The MS Trust is a leading independent UK charity for people with MS, their families and friends and for all health professionals who work with them. It provides education for nurses, undertakes research and delivers positive and constructive information about MS.
Multiple Sclerosis Trust, Spirella Building, Bridge Road, Letchworth Garden City, Hertfordshire
SG6 4ET
Tel: 01462 476700, Fax: 01462 476710
Email: info@mstrust.org.uk
Website: www.mstrust.org.uk
The National Association for Colitis and Crohn’s Disease (NACC)
The Association welcomes as members anyone who has colitis or Crohn’s disease, their families and friends, health professionals and anyone who wishes to support our activities. NACC offers information and support services to people who are living with Inflammatory bowel disease (IBD) and raises funds to support research into the medical, health care, social and psychological aspects of IBD
NACC, 4 Beaumount House, Sutton Road, St. Albans, Herts AL1 5HH
Information Line: 0845 130 2233
Support Line: 0845 130 3344; E-mail:nacc@nacc.org.uk
National website: www.nacc.org.uk
Fax: 01727 862 550
The National Autistic Society (NAS)
The National Autistic Society (NAS) provides education, treatment, welfare and care to people with autism and related conditions.
The National Autistic Society, 393 City Road, London EC1V 1NG UK;
Tel: 020 7833 2299; Fax: 020 7833 9666
Autism Helpline: 0845 070 4004
National website: www.autism.org.uk/
E-mail: nas@nas.org.uk
National Childbirth Trust
National Childbirth trust
Alexandra House
Oldham Terrace
London
W3 6NH
Enquiry line - 0870 444 8707 (mon-thurs 9am-5pm, fri 9am-4pm)
Pregnancy and Birth line - 0870 444 8709 (mon-fri 10am-3pm)
Breastfeeding line - 0870 444 8708 (7 days a week 8am-10pm)
Administration line - 0870 770 3236 (mon-fri 9am – 5pm)
Fax - 0870 770 3237
Minicom - 0208 993 6714
Email - enquiries@nct.org.uk
Website - www.nct.org.uk
NCT Sales - 0870 112 1120 www.nctsales.co.uk
Service area UK approx 320 branches.
The National Eczema Society
The National Eczema Society provides the practical information and support needed to manage your skin problem effectively. The helpline of the Information Department can provide you with full access to the latest information through membership, providing support for people with eczema and their carers.
Hill House, Highgate Hill, London N19 5NA
National website: www.eczema.org/
Tel: 0870 241 3604; E-mail: helpline@eczema.org
National Gaucher Foundation
The National Gaucher Foundation gives information for patients and families about the inheritance of Gaucher disease.
Gauchers Association, 25 West Cottages, London, NW6 1RJ
National website: www.gaucher.org.uk
Tel: 0207 433 1121; E-mail: office@gauchersassociation.org.uk
National Kidney Federation (NKF)
The NKF is the only UK charity run by Kidney patients for kidney patients. Its aim is to promote, throughout the UK, the welfare of persons suffering from kidney disease or renal failure and those relatives and friends who care for them.
6 Stanley Street, Worksop, England
S81 7HX; Tel: 0845 601 02 09; Fax: 01909 481 723
National website: www.kidney.org.uk/
National Osteoporosis Society (NOS)
The NOS offers support to people with osteoporosis, their families and carers through a range of information booklets, a national telephone helpline and a network of regional support groups.
Camerton, Bath BA2 0PJ
National website: www.nos.org.uk
E-mail: info@nos.org.uk or nurses@nos.org.uk
Tel: 01761 471 771; Helpline: 0845 450 0230; Fax: 01761 471104
No Panic
For help with panic attacks, phobias and obsessive compulsive disorders.
93 Brands Farm Way, Telford, Shropshire, TF3 2JQ
National website: www.nopanic.org.uk
E-mail: ceo@no-panic.co.uk
Tel: 0808 808 0545; Fax: 01952 270 962
AboutOperations
AboutOperations was formed to offer a unique reference point on preparing for and recovering from an operation.
Due to have an operation? Recently been through surgery? Then you'll have lots of questions - you'll find the answers here.
National website: www.aboutoperations.co.uk
Parkinson’s Disease Society
The Parkinson’s Disease Society can provide information on all aspects of Parkinson’s including drugs, surgery, therapies, social and health care rights, benefits, insurance, employment, driving, holidays, respite care etc. They respond to queries from people with Parkinson’s, their families and friends, and the professionals who care for them. If necessary, you may be referred to another organisation or agency to help you get the information you need.
Local website: www.parkinsonscambridge.org.uk
National website: www.parkinsons.org.uk
E-mail: enquiries@parkinsons.org.uk
Tel: 0808 800 0303
The Psoriasis Association
The Psoriasis Association supports those who have psoriasis, raises awareness about psoriasis, and funds research into the causes of and treatments for psoriasis
Milton House, 7 Milton Street, Northampton NN2 7JG
National website: www.psoriasis-association.org.uk/
E-mail: mail@psoriasis.demon.co.uk
Tel: 0845 676 0076
Fax: 01604 792 894
Spinal Injuries Association
A self-help group for people who have spinal injuries.
SIA House
2 Trueman Place
Oldbrook
Milton Keynes
MK6 2HH
TEL: 0845 678 66 33
Fax :0845 070 6911
Email: sia@spinal.co.uk
Web: www.spinal.co.uk
STRADA – Stroke and Action for Dysphasia Adults
STRADA of Cambridge is a Day Support Unit for sufferers of Brain Attack. They are there to provide speech therapy and physiotherapy in addition to other activities to enhance the self esteem and increase the quality of life for sufferers.
45 Tunwells Lane, Great Shelford, Cambridgeshire CB2 5LJ; Tel: 01223 842 919
The Stroke Association
The Stroke Association provides practical support for people who have had strokes, their families and carers. It campaigns, educates and informs to increase knowledge of stroke at all levels of society.
The Stroke Association, 240 City Road, London, EC1V 2PR; Helpline: 0845 30 33 100; Email: info@stroke.org.uk
Website: www.stroke.org.uk
The Trauma After-Care Trust (TACT)
The Trust provides contact with professionals who can provide patients and carers with help and support following a traumatic event.
Buttfields, 1 The Farthings, Withington, Gloucestershire GL54 4DF
Helpline: 01242 890 306; Tel: 01242 890 498; Fax: 01242 890 498; E-mail: tact@tacthq.demon.co.uk
Unique – Rare Chromosome Disorder Support Group
Unique acts a family support group, provides information and promotes awareness of different chromosome disorders.
Unique, PO Box 2189, Caterham, Surrey CR3 5GN England
National website: www.rarechromo.org
E-mail: info@rarechromo.org
Tel/Fax: 01883 330 766
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